We are saddened to say that we did not get the results that we were hoping for. The cancer continues to spread in my liver and in my back and some still in my chest area. Numb is a good description of how we feel. Today is a new day and I have a bit of a better perspective on things.
The plan as of now is to do nothing but enjoy some plans that have already been made. Hal and I are renewing our wedding vows on September 6th. It is our ten year anniversary and we thought it most appropriate considering circumstances. If you are reading this then you are invited to come and join us. My brothers and their kids along with Grace and I are flying down to Florida to watch the Gators play in the swamp. Nothing like seeing a game there I tell ya! So I plan to enjoy the next few weeks and do all that i can and then it's back to work on killing this cancer.
My doctor once again gave me a list of treatments to try and like Hal says it's like playing spin the bottle when it comes to choosing. Most of the stuff she recommended is some really hard core stuff but I guess if we want to start getting down and dirty then that's what I'll do.I am scheduled to return to treatment on sept. 16th. To be truthful, I feel like giving up sometimes that I cannot possibly keep doing this but when I look into my girls eyes then i know that i can do it. I don't want them to ever ask why mom gave up.
Thursday, August 27, 2009
Tuesday, August 18, 2009
People keep asking me if I am ready for school to start and the answer has always been no but as I listen to the girls fight in the next room I can officially say I AM READY!
They are ready as well and are excited to find out who their teachers are be with their friends and away from each.
My mom came in from Colorado and has been here almost a week which has been really nice. She has gotten to spend lots of quality time with us and help in any way that she can.
This is my week off from chemo and feeling pretty good. I have been tapering off of my steroids and can feel a difference in how I feel. My breathing is more labored and my cough is coming back. Plus the steroids were what gave me some energy and can feel that depleting as well. But still my day is still doable and that is all I can ask for. A note to some of you if you see my sneak out of a large crowd or gathering. My senses are very sensitive I guess from the chemo. I cannot handle loud noises. It over sensitizes me big time, strange I know but just letting you know. So at church or at a restaurant if you see me sneaking out the door that is why.
Once again we have been amazed at your outpouring of love and devotion to our family. There have been lots of you making donations to a fund that was set up for us so that I could seek out some alternative therapies that can be expensive and not covered by our insurance. Thank you so much, because of you I am able to do just that. We are blessed with great insurance and prescription plan and we are able to keep up with our bills among all the craziness. Until we find out what the results of mt CT scan is next week, we are kind of in a holding pattern on what our next decisions will be. Whether we seek other options elsewhere or better yet that the cancer is diminishing or even better that it is GONE!
Keep up with the prayers. Have a great week.
They are ready as well and are excited to find out who their teachers are be with their friends and away from each.
My mom came in from Colorado and has been here almost a week which has been really nice. She has gotten to spend lots of quality time with us and help in any way that she can.
This is my week off from chemo and feeling pretty good. I have been tapering off of my steroids and can feel a difference in how I feel. My breathing is more labored and my cough is coming back. Plus the steroids were what gave me some energy and can feel that depleting as well. But still my day is still doable and that is all I can ask for. A note to some of you if you see my sneak out of a large crowd or gathering. My senses are very sensitive I guess from the chemo. I cannot handle loud noises. It over sensitizes me big time, strange I know but just letting you know. So at church or at a restaurant if you see me sneaking out the door that is why.
Once again we have been amazed at your outpouring of love and devotion to our family. There have been lots of you making donations to a fund that was set up for us so that I could seek out some alternative therapies that can be expensive and not covered by our insurance. Thank you so much, because of you I am able to do just that. We are blessed with great insurance and prescription plan and we are able to keep up with our bills among all the craziness. Until we find out what the results of mt CT scan is next week, we are kind of in a holding pattern on what our next decisions will be. Whether we seek other options elsewhere or better yet that the cancer is diminishing or even better that it is GONE!
Keep up with the prayers. Have a great week.
Sunday, August 9, 2009
Hanging On To Summer
August is here which means we are on the countdown until school starts. I really am not ready to get back into that dreaded routine and let go of the lazy days of summer. Especially not looking forward to getting up before 9:00am.
Wednesday will be the end of the third cycle of my chemo. There is no plan on how many i will do ( I guess how ever many it takes). We will do scans on the 26th to see if this is working. I know you are all praying for me but maybe a few extra rosaries for me on that day would be appreciated. My CT scan is at 8:00am. My blood counts (red and white) have been high the past few weeks which i thought was good. Usually low blood counts are bad and leave you susceptible to all kinds of stuff but the doc says that high ones indicate that I am dehydrated so last week and here on out i will get a bag of fluid hung. I drink water all day and really don't feel it but when I went to press a towel on my leg and the indention stayed a while led me to believe perhaps there was some truth to the matter. I am doing well. Staying upright and still doing what i can. My cough has gotten much better but still have trouble catching a breath here and there. and tend to get around at a much slower pace. You may have noticed that my hair is growing back in YEAH! Apparently you don't lose hair with this chemo which is so nice because with this heat the wigs would stay in the closet.
I met with my ENT last week about my voice. My right vocal cord has begun to bow out due to my depletion of muscle mass and usage. Go figure! so next month we will go in and really take a look around and get to the bottom of this I hope. God has added to my lack of talking by the side affects of the chemo which is mouth sores. Last night the inside layer on the right side of my mouth just completely peeled off. Lovely I know. Actually today it feels much better but still hard to eat certain foods. Many of you who have seen me notice that I have lost some weight which I have. Some of it is due to my lack of appetite and nausea but some of it has to do also with my change in diet. I have been juicing lots of greens and beets and doing some protein shakes and other changes. Can't seem to shake the ice cream craving though. With the money you have all raised for us I have started doing colonics which is as much fun as it sounds but it is a way to get rid of all the toxins and help my body absorb the good food and juicing that I am doing. I am also seeing a natural wellness provider who can analyze my blood and tell me what vitamins I am lacking, what foods to eat and avoid and supplements I need to fight the cancer. I meet with him next week and am really excited to see what he says. Thanks to all of you who have shared your research and ideas to me to get me well and cure this crap.
I wish I could come up with a better way to say thank you because it seems like that is all I say but really want you to know how we truly feel by all of this. You humble us and spoil us and love us so much that we just want to squeeze each one of you and let you know how truly we love you. Hal and i have learned so much from all of you that we try to incorporate a way in which we can help a family or person in need in even the smallest of ways. The girls have seen all of you do so much for us and I know your kids have also witnessed the beauty in serving others.
Huge love and praises to all of you who worked so hard on the drive thru BBQ especially Mark and Erin who hosted their home as the setup and delivery station and to all the behind the scenes angels and of course those who enjoyed the awesome food. Another huge hug and squeeze to Amy Loehr who made all of the awesome cupcakes for the cause. I was blown away by the amount of cupcakes she put out over the last month.
I leave you with today's scripture reading.. 2 COR 9:6-10
Brothers and sisters:Whoever sows sparingly will also reap sparingly,and whoever sows bountifully will also reap bountifully.Each must do as already determined, without sadness or compulsion,for God loves a cheerful giver.Moreover, God is able to make every grace abundant for you,so that in all things, always having all you need,you may have an abundance for every good work.As it is written:
He scatters abroad, he gives to the poor;his righteousness endures forever.
The one who supplies seed to the sower and bread for foodwill supply and multiply your seed and increase the harvest of your righteousness.
May you all reap bountifully for all that you have done for us! Have a great week.
Wednesday will be the end of the third cycle of my chemo. There is no plan on how many i will do ( I guess how ever many it takes). We will do scans on the 26th to see if this is working. I know you are all praying for me but maybe a few extra rosaries for me on that day would be appreciated. My CT scan is at 8:00am. My blood counts (red and white) have been high the past few weeks which i thought was good. Usually low blood counts are bad and leave you susceptible to all kinds of stuff but the doc says that high ones indicate that I am dehydrated so last week and here on out i will get a bag of fluid hung. I drink water all day and really don't feel it but when I went to press a towel on my leg and the indention stayed a while led me to believe perhaps there was some truth to the matter. I am doing well. Staying upright and still doing what i can. My cough has gotten much better but still have trouble catching a breath here and there. and tend to get around at a much slower pace. You may have noticed that my hair is growing back in YEAH! Apparently you don't lose hair with this chemo which is so nice because with this heat the wigs would stay in the closet.
I met with my ENT last week about my voice. My right vocal cord has begun to bow out due to my depletion of muscle mass and usage. Go figure! so next month we will go in and really take a look around and get to the bottom of this I hope. God has added to my lack of talking by the side affects of the chemo which is mouth sores. Last night the inside layer on the right side of my mouth just completely peeled off. Lovely I know. Actually today it feels much better but still hard to eat certain foods. Many of you who have seen me notice that I have lost some weight which I have. Some of it is due to my lack of appetite and nausea but some of it has to do also with my change in diet. I have been juicing lots of greens and beets and doing some protein shakes and other changes. Can't seem to shake the ice cream craving though. With the money you have all raised for us I have started doing colonics which is as much fun as it sounds but it is a way to get rid of all the toxins and help my body absorb the good food and juicing that I am doing. I am also seeing a natural wellness provider who can analyze my blood and tell me what vitamins I am lacking, what foods to eat and avoid and supplements I need to fight the cancer. I meet with him next week and am really excited to see what he says. Thanks to all of you who have shared your research and ideas to me to get me well and cure this crap.
I wish I could come up with a better way to say thank you because it seems like that is all I say but really want you to know how we truly feel by all of this. You humble us and spoil us and love us so much that we just want to squeeze each one of you and let you know how truly we love you. Hal and i have learned so much from all of you that we try to incorporate a way in which we can help a family or person in need in even the smallest of ways. The girls have seen all of you do so much for us and I know your kids have also witnessed the beauty in serving others.
Huge love and praises to all of you who worked so hard on the drive thru BBQ especially Mark and Erin who hosted their home as the setup and delivery station and to all the behind the scenes angels and of course those who enjoyed the awesome food. Another huge hug and squeeze to Amy Loehr who made all of the awesome cupcakes for the cause. I was blown away by the amount of cupcakes she put out over the last month.
I leave you with today's scripture reading.. 2 COR 9:6-10
Brothers and sisters:Whoever sows sparingly will also reap sparingly,and whoever sows bountifully will also reap bountifully.Each must do as already determined, without sadness or compulsion,for God loves a cheerful giver.Moreover, God is able to make every grace abundant for you,so that in all things, always having all you need,you may have an abundance for every good work.As it is written:
He scatters abroad, he gives to the poor;his righteousness endures forever.
The one who supplies seed to the sower and bread for foodwill supply and multiply your seed and increase the harvest of your righteousness.
May you all reap bountifully for all that you have done for us! Have a great week.
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